Job Description

Job Title: Manager, Government Affairs 

Location: Remote [Washington, D.C.] 

Reports to: Executive Director

Job Type: Full-Time, Exempt 

Salary Range : $70,000-90,000 

Position Overview:  

The Manager, Government Affairs will play a key role in advancing the legislative and regulatory priorities of the Rare Disease Company Coalition, a trade association focused on rare disease advocacy. Reporting to the Executive Director, this position supports the Government Affairs team in advocating for legislative and regulatory policies that benefit the rare disease community. The Manager will monitor policy developments, support advocacy campaigns, engage with policymakers, and assist in creating communications and resources for the RDCC’s government affairs initiatives. This position involves regular interaction with high-level executives at leading biopharmaceutical companies and engagement with government officials at all levels. 

This position is remote, but the successful candidate must reside in the Washington, D.C. area.

About the Rare Disease Company Coalition:  

The Rare Disease Company Coalition is a coalition of life science companies dedicated to discovering, developing, and delivering treatments for patients living with a rare disease. Founded in 2021, the RDCC has emerged as a preeminent leader and advocacy partner on rare disease issues among policymakers in our nation’s capital. RDCC offers a comprehensive benefits package designed to support the health, well-being, and financial security of our employees. This includes a competitive salary, a medical plan with zero cost to the employee, a dental plan with zero cost to the employee, a 401(k) savings plan with a generous employer match, health savings account contributions, life insurance, short-term and long-term disability coverages. Employees also enjoy a generous holiday, vacation, and sick leave program as well as a week-long organization shutdown.

Key Responsibilities:  

Legislative Affairs, Policy and Advocacy:  

• Assist in the development and implementation of government affairs strategies aimed at advancing policy solutions for individuals affected by rare diseases. 
• Organize meetings with elected officials, government agencies, and other stakeholders to advance the association’s policy priorities.
• Represent the Coalition in meetings with staff on Capitol Hill and officials within the administration to advocate for the Coalition's priorities and initiatives.
• Monitor federal legislative and regulatory developments that impact the rare disease community, providing regular written and oral updates and analysis to internal stakeholders. 
• Conduct research and analysis on policy issues related to health care, rare diseases, and other relevant sectors to inform the association’s advocacy efforts. 
• Prepare advocacy materials, including talking points, fact sheets, and policy briefs, for meetings with lawmakers, regulatory agencies, and other key stakeholders. 
• Attend relevant meetings, conferences, and events to represent the association and build networks that further advocacy efforts. 
• Supports the management of external federal affairs consultants.
• Work closely with the communications team to craft messages that resonate with policymakers and the rare disease stakeholders.

Member Engagement:  

• Actively participate in Coalition meetings, keeping members informed of updates related to RDCC policy priorities, and provide updates to the RDCC Board as needed. 
• Prepare regular reports for RDCC members, detailing the status of policy priorities and updates on RDCC activities. 

Other:  

• Performs all other duties as necessary to support the success of the Coalition. 

Qualifications:  

• Education: Bachelor’s degree required. 
• Experience:  
• Minimum of 2-5 years of experience in government affairs, public policy, or advocacy, with exposure to healthcare or rare disease issues preferred. 
• Experience working with legislative processes, government agencies, and advocacy groups. 
• Experience on Capitol Hill or other government experience preferred.
• Skills:  
• Strong written and verbal communication skills, with the ability to effectively communicate complex policy issues to diverse audiences. 
• Ability to track and analyze legislative and regulatory developments, providing actionable insights. 
• Proficient in Microsoft Office Suite and familiarity with advocacy and lobbying platforms (e.g., tracking software, CRM systems). 
• Strong research skills and attention to detail. 
• Ability to work independently and as part of a team in a fast-paced environment. 

Personal Attributes:  

• Passionate about rare disease issues and committed to advancing the needs of the rare disease community. 
• Proactive, with a strong sense of initiative and the ability to manage multiple priorities. 
• Professional, with strong interpersonal skills and the ability to build relationships with a diverse range of stakeholders. 
• Results-oriented and driven to achieve meaningful impact through advocacy and policy efforts. 

Application Process:  

Interested candidates should submit a resume and optional cover letter to [email protected]. The position will remain open until filled. 

The Rare Disease Company Coalition is an equal opportunity employer. We celebrate diversity and are committed to creating an inclusive environment for all employees.  

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